News and updates with the latest clinical trials, medical reports and interesting developments within the DMD community.
Yesterday, Duchenne UK hosted a webinar about the DMD Hub.
Our co-founders, Emily and Alex, were joined by Emma Heslop, DMD Hub Manager, and Michela Guglieri, Honorary Consultant at the John Walton Centre Newcastle. The webinar provided an update on our plans, through the DMD Hub, to support gene therapy trials coming to the UK and how we are working with DMD Hub Hospital sites to plan for re-opening clinical research facilities, given the restrictions put in place due to COVID-19.
The COVID-19 pandemic has been challenging for the Duchenne community and the neuromuscular centres where patients attend for appointments and to take part in clinical trials.
The DMD Hub has continued to play a key coordination role between sites, sponsors and patients involved in clinical research.